Tuesday, April 2, 2013

A Fond Farewell

In the days leading up to Ken's passing, he was blessed with many visitors from Vermont, New Hampshire, Connecticut and as far away as the Caronlinas...to say that he felt loved is certainly accurate! 
And in the quiet hours of the morning of Friday, March 22nd, Ken's fight finally ended. 

Obituary

Kenneth Bryant Thulen, 38, of Windsor, passed away peacefully at home on Friday, March 22, 2013, surrounded by his family, after battling colorectal cancer. He was born November 7, 1974 in Hartford and grew up in Windsor, graduating from Windsor High School in 1994. He played Varsity Hockey and Lacrosse and went on to coach Windsor Youth Hockey. Despite the good natured ribbing from his friends, he managed the Windsor Girls Field Hockey Team; at times participating in practice as though he was a player. He also played adult league indoor soccer and taught snowboarding. Kenny loved the outdoors and being active. He enjoyed hiking, snowboarding, fishing, kayaking and his visits to Key West, FL. He was also an avid New York Yankees fan. Kenny lived in Vermont, New Hampshire, and Colorado before moving back home to be near his family. He was a fun uncle, who loved his family dearly and will be remembered for his loyalty and willingness to do anything to help others. He will also be remembered for his ability to always make you laugh, whether it was from his horrible jokes or silly antics. That ability even crossed over into a career as a Chili's manager. He could often be heard saying that he needed to go to work to save lives, "If people don't eat, they die." He is survived by his wife, Nicole (Bolduc) Thulen, his father, Philip Thulen, Jr. and wife Paula of Windsor; his mother, Virginia Thulen and her partner Walter Jabs, Jr. of Springfield, VT; his brother, Philip Thulen III and his girlfriend Brenda Ransford of Windsor; his sister, Brenda Soriano and her husband Jon of Sandy Hook; nieces, Shelby Cosgrove, Sophia Soriano, and Maci Thulen, nephews, Christopher Thulen, Noah Thulen, Owen Thulen and Joseph Soriano. He also leaves his dogs, Lily and Cookie. His family will receive friends on Friday, March 29, from 4-7 p.m. at the Carmon Windsor Funeral Home, 807 Bloomfield Ave., Windsor. A celebration of Kenny's life will be held on Saturday, March 30, at 12 p.m., also at Carmon Windsor Funeral Home. Donations in his memory may be made to the St. Jude Children's Research Hospital, 501 St. Jude Place, Memphis, TN 38105. For online condolences please visit www.carmonfuneralhome.com.
 
On Friday, March 30th his family and I recieved over 400 people, in a room full of our favorite moments with Ken.  And on Saturday, March 31st, we celebrated his life.  Guests traveled from as far as California and Colorado to be with us that day and helped to make it a true celebration!  Here are my final words...
 
Good afternoon everyone and thank you for coming today. Before I begin I would like to thank the 100’s of people who stood in line for upwards of 90 minutes last night to pay their respects and to share their stories about Ken with me and his family. I would also like to thank all of the people who traveled here on this holiday weekend to help us celebrate Ken’s life. Thank you to the countless health care professionals in Colorado, New Hampshire and Connecticut, without all of them, this fight would have been impossible. Thank you to Carmons for turning our vision into an impeccable display. Thank you to my friends and family for your unwavering love and support throughout the most trying times. And to Ken’s friends and most of all his Family: Phil, Paula, Ginny, Walt, Brenda, Jon, Sophia, Joseph, Phil, Brenda, Lori, Christopher, Shelby, Noah, and Owen…it is because of you all that Ken was the man these people are here to celebrate today, and the way through which his memory lives on.

I hesitated, at first, to stand up and speak, because I run the risk of this sounding more like a roast than a eulogy. So I have to throw in this disclaimer that any jokes are meant to be made and taken in good fun…because if there was anyone who liked to make a joke, it was Ken. So here goes…
A few weeks ago, the mother of one of Ken’s good friends came to the house and I don’t have her exact quote, but I went something like, “Kenny is the most annoying person I have ever loved.” And for those of you who know Ken, know that this statement is completely accurate.

The first time I met Ken, I didn’t like him. And the second time I met Ken, I didn’t like him. And it wasn’t until the third time I met Ken that I thought, hmmm…maybe I kind of like him? Ken never had a problem letting his inner child come out. And for those of you who know me, know I’m more of a neat, clean, organized, must be in control, some may even say type A personality. Ken’s approach to life was so foreign to me. But for some reason we clicked…

A few years later, Ken and I got married and moved to Colorado, a dream come true for both of us. Out there, we attacked life, seizing every opportunity that came our way. We traveled locally, attended countless sporting events, went to the theatre, hiked, and skied at several mountains...well, let’s be honest, Ken snowboarded…I complained about cold and early it was. We hit up countless tourist hot spots and with Ken’s constant support, I was even able to complete my Master’s degree.

Ken taught me how to approach life without fear. He showed me that life didn’t need to be a checklist, but a bucket list. He taught me to see the lighter side of things, to find the positive in every situation, to laugh at myself. He showed me that manners still have a place in today’s society. And taught me the true definition of unconditional love.

When Ken got diagnosed, he may not have fought against this disease the way you would, or the way I would, or the way any of us thought it should be fought…Ken fought it his way and he stayed true to himself, always allowing his inner child to be present.

I can remember when the doctor first gave Ken a prescription for pain killers. A few weeks went by and she was shocked that the prescription didn’t need to be filled. Ken’s responded without hesitation, “oh I haven’t been taking them, I don’t want to get addicted”…he always refused to allow others to believe that this disease was beating him, even if he didn’t believe it himself.

And just a few months ago when Ken was in the hospital with a chest tube the doctor told him that he was going to need to get a flu shot. He replied, “oh…don’t those hurt?” The doctor looked at him totally perplexed and she said, Ken…you have a chest tube, one of the most painful procedures…a flu shot is nothing compared to this…but that was Ken, so innocent and completely unaware of his own strength.

In the wake of this disease, Ken remained; fun loving and free spirited, polite and caring…oftentimes moreso for others than he ever did for himself. He remained loyal and committed to his family and to me. And in the wake of this disease, I believe that Ken became the man he had always wanted to be. Brave and strong, able to set boundaries and advocate for himself. And knowing his fight was nearing its end, he stared death in the face and bravely gifted his prized possessions.

So many people have asked WHY. And I can’t stand here and say I know why Ken Thulen. But I can see the lessons I was supposed to learn from this and I can see the healing that has been given to this family, despite an enormous loss. So, TODAY, I challenge you, to think about what lesson it is you have learned by knowing this amazing man. Because to walk away from this, from all of this, and not have learned any lesson at all, is the true tragedy.

It is said that life is not a matter of milestones, but of moments. If this is true, then Ken lived a wonderful life filled with many, many special moments, as you can see by the pictures around the room. It is my hope that you all get to live such a special life.
 
 
 
THANK YOU ALL FOR TUNING IN...AND BEING A PART OF THIS FIGHT WITH US.  BEFORE I GO...JUST A LITTLE FOOD FOR THOUGH...
 
In the US, 1 person under the age of 40 is diagnosed with cancer every 8 minutes.
 
Of cancers that affect both men and women, colorectal cancer is the second leading cause of cancer-related deaths in the United States & the third most common cancer in men and in women.
 
The chance that you will know someone with cancer in your lifetime is 100%.
 
The chance that it will be you: 33% for women, 50% for men.
 
Colon and rectal cancer can be prevented!
By finding and removing precancerous polyps that can develop into cancer, colorectal cancer can be stopped before it ever starts!
 
For more information about diagnosis & prevention visit
www.cancer.org/coloncancer.
 
 
 

Saturday, March 16, 2013

March Madness

Hey Everybody!

March certainly did come in like a lion...dropping a decent amount of snow over various parts of New England.  I think I speak for everyone when I say that I'm ready for spring!!

As I mentioned last time, Ken has begun hospice care.  Lisa, his hospice nurse, is wonderful.  She is a young, spunky nurse who fits into this crazy situation just fine!  She is coming to see Ken daily.  Primarily, her job is to check vitals, order medication and manage Ken's pain. She has ordered him a hospital bed and oxygen, both of which have made him much more comfortable. Recently he began taking liquid morphine, which makes it easier for Ken to breathe.

He has had many visitors in the past few weeks and we celebrated his 38 and 1/3 birthday! Brenda made Ken's favorite, carrot cake...AND Ken finally got that pony he's always wanted.

Again, thank you to everyone for traveling long distances, making food, and of course your continued love and prayers. 

March is colo-rectal cancer awareness month.  Please, please talk to your doctor about whether or not you should be getting an early screening...it truly could save your life!

XOXO Ken & Nicole

Saturday, March 2, 2013

10 Months at a Glance

Hey Everyone,
  We know it's been close to forever since our last post...but life just sort of happened.  So, we're going to try to bring you up to speed as best we can.

MAY 2012-






This was a busy month, Nicole finished Grad School and to celebrate, we took a trip to Telluride, CO, with our friends Sean and Maryann, and their dog, Cricket.   We stopped at the Sand Dunes....




It almost didn't look real! The sand was hot...but the mountains were in the background...just beautiful!

Over Mother's Day weekend, Ken made a trip home to NH and met with a colo-rectal oncologist at Dartmouth Hitchcock Medical Center, in Hanover, New Hampshire.  Dr. Pippus seemed extremely motivated and excited about treating Ken.  After that trip, he flew back to Denver, packed up some things and prepared to travel back east...but not without the company of the doggies and big sister, Brenda!  Since paperwork for long term disability wasn't finalized, Nicole stayed in Denver and continued working....

JUNE 2012-
  Ken began his new regiment of chemo, the harshest one yet.  The side effects were staggering.  He lost all of his hair, broke out with painful acne, had bouts of vomiting and was extremely sensitive to the sun. 







JULY 2012-

Ken continued to go to chemo treatments.  He was approved for long term and social security disability.  Nicole's friend, Maureen flew to Denver and they made the 2,000 mile trip back east...but not without causing a little trouble and stopping in Chicago to meet up with Tara!!
















AUGUST 2012-
  A CT scan revealed that the harsh chemo was not working...and the tumors continued to grow.  The only option Ken was left with was to wait for a clinical trial pill form of chemo to become FDA approved. 

But, Ken didn't wait idle...
He fished with Philip and Brenda

He also helped do some stone work around the base of the Danbury House...










SEPTEMBER 2012-
  Finally, the new pill form of chemo begins.  It, with it's own weird set of side effects.  For some reason, it made Ken's bones ache and made it hurt to move.  We were hoping for the ole adage, no pain, no gain!

OCTOBER 2012-When Ken didn't feel like he was 100, he tried to get out and enjoy the New Hampshire foliage.  Here he is on his way back from hanging a camera in the woods, in hopes of capturing some photos of the wildlife...

NOVEMBER 2012
  Ken wound up in the hospital over his birthday with a cyst and fistula that had developed in his bootie.  Surgery was necessary in order to solve the problem.  Before they determined what was wrong, the hospital ran a battery of tests.  A CT scan of his chest found that his new pill form of chemo wasn't working and that one of his tumors had nearly doubled in size.  Surgery was performed and the situation was resolved.  A few weeks later, we met with Ken's oncologist.  He gave us the paralyzing news that there were no more FDA approved chemo options for Ken.  He said that there may be one more clinical trial out of Boston if we wanted to go that route...Ken opted to not.  So, it was then the gauntlet fell...and Ken was told he had 6 months to live.  We went on to celebrate Thanksgiving with his family...and tried to focus on all that we had to be thankful for.

DECEMBER 2012-
It was pretty much business as usual...we were busy getting clerical things taken care of and of course Christmas shopping.  The holidays were wonderful and many happy memories, and perhaps, even traditions, were made!  Here is a picture of Ken putting together some Lego's with his nephew.

JANUARY 2013-
Happy New Year!!  Ken was able to spend sometime snowmobiling with his brother in New Hampshire...Come to find out though...Ken was functioning with only one lung.  Shortly after this trip, Ken found himself in the ER with over 4 liters of fluid in his right lung.  They drained the fluid and prepped Ken for surgery.  They went in and scraped Ken's ribcage, blew talc powder into his chest cavity and hoped that his lung would stick, thus allowing the lung to drain on its own.  He was in the hospital for 5 days with a chest tube.  We met so many wonderful people...thank you so much to the incredible staff at St. Francis Hospital!! 

FEBRUARY 2013
Ken continued to rest after surgery.  But there were no complications and the surgery seemed to take.  Hospice care began.  Ken has a young, energetic hospice nurse, Lisa, who fits right into this crazy situation perfectly!!  She has been very helpful in educating all of us about the disease process.  But it wasn't all, doom and gloom.  On February 11, Ken, Philip and Noah went to the Bean Pot, in Boston...an event Ken has wanted to go to since forever.  Here is a picture of them outside the rink...


We also finally got to take that trip to Mohegan Sun that was planned for way back in November...better late I guess!  Here's a picture of the view from the room we stayed in.









So, that's it...the abridged version!  We'll get into what's happened since then in a little bit.  Take time and let this all digest.  We thank each and every one of you for your continued love, support, kind words and prayers.  XOXO Ken & Nicole

Monday, April 16, 2012

Chemo #15 and Busy Bees

Hey Guys! 
  It's been business as usual around here in the health department, as far as chemo is concerned.  Ken has developed a serious cough over the last few weeks, but according to the Nurse Practitioner it either "just allergies" or his "tumor has grown into the lymph nodes in his lung." The only way to determine what's going on is to do a CT scan.  We are waiting to hear from the oncologist to go ahead and make an appointment to rule out any growth.  The neuropathy in Ken's hands and feet is worsening, but according to the doctors, this is normal after stopping oxalyplatin and it can take up to a year for it to go away.  This makes buttoning a shirt, walking and even driving pretty difficult at times.  But hopefully he'll start to feel better soon.
  Living with Uncle Jim and Auntie Cappy has been great in helping Ken get motivated and out of the house.  The dogs, especially love all the extra love and attention they get! 


Nicole, however, needs to beef up on her cribbage game...due to the fact that she lost to Jim 3 games to 1 the other day and now owes him $20...









As an incentive for renting our storage unit, we were able to pick a professional sport game that we would like to attend for free.  We decided to hit up the Avalanche's second to last home game and hopefully see them clinch a playoff spot. 









We lucked out and were nine rows off the ice, just to the left of the penalty box. 









Sadly, though, the Av's lost to the Columbus Blue Jackets and didn't make it to the post season....
The next day, it was wheels up for Nicole, as she headed to Waukesha, WI to visit her bestie, Tara and family.  While there, Nicole got to celebrate Easter, and her God-daughter Kendall's 2nd birthday!
 
 


And...they may have hit up a few bars throughout the weekend!








 Ken's mom was able to make a visit to Denver while Nicole was gone, which enabled them to have a lot of quality time together.  And this past weekend, Nicole's parents stopped in to Denver on their way to Las Vegas.  So...needless to say, we've been pretty busy!  We hope you all  had a wonderful Easter and we hope to see you all soon!  Love, Ken & Nicole

Friday, March 30, 2012

More Chemo & A Move

Hey Everyone & Happy Spring!
  Well, it seems we've sort of hit our stride in dealing with this whole cancer thing.  The doctor came back with news that radiation and surgery are not options for Ken at this time.  Surgery would most definitely result in a colostomy bag and radiation presents a high risk for internal bleeding.  So, at this point in time Ken will just continue chemo every two weeks, until....well that's this BIG question.  Right now it looks like that will be forever...so we'll just have to wait and see. 
  In between chemo treatments, we entered step one of phasing ourselves out of Colorado, when we got rid of most of our things, put what was left in storage and moved in with Uncle Jim and Auntie Cappy.  They have been so gracious to let us stay in their home these last few months that we're here.  The dogs are most the most excited, however, because this means lots of pats on the head, walks outside and treats!! 
  Ken's Uncle Paul made a quick visit to Colorado this past week and Ken was able to go and have dinner with him.  It's always so nice to see a familiar face! 
  And I think that's really it to report.  We hope you all have a fantastic Easter and we'll talk to you soon.  Love, Ken & Nicole

Friday, March 16, 2012

New Chemo & Peter's Visit

Hey Everyone-
  On Monday, March 5th Ken had a GI scan with barium.  He had to drink a barium liquid and then every 20 minutes or so for an hour have scans taken of his GI track.  This is to see how his digestive track in functioning as well as to see whether or not his Crone's is isolated to just the ilium.  Then on Tuesday, March 6 he had a CT scan with contrast.  This was a routine scan to monitor the growth/shrinkage of the cancer throughout Ken's body.


  On Friday, it was time get excited when Peter landed in Denver...maybe not as exciting to some as Peyton Manning landing in Denver, but it certainly made our weekend!  And we tried to make the most of it!  Of course we took him to our favorite sushi spot, Junz.  Then made time for Nicole to kick his butt in cribbage.



 On Saturday we went downtown to REI and did some shopping and walked with the dogs along the river walk and enjoyed the nearly 70* weather.  Peter and Ken also revisited the crime scene where Lenny had his go cart crash a few years ago and decided to do a race in his honor.  There were a few spin outs, but Ken was the winner.  Later that night we went back downtown to watch the Colorado Mammoth, Colorado's indoor lacrosse team win over their opponent in a buzzer beater game.  And no trip to Denver would be complete without an afternoon at Auntie Cappy & Uncle Jim's for some delicious food, tasty wine and fabulous company.   Sunday afternoon came waaaay too quickly and we were back at the airport dropping him off.  But we all (especially Lily and Cookie) enjoyed his company and hope to see him again soon.





  Tuesday, March 13th it was back to business as usual.  This day was bittersweet.  On the one hand Ken was happy to be off of the chemotherapy that causes the neuropathy, but bitter at the fact that he needs to continue chemo.  The most recent GI scan showed that Ken's GI track is functioning mostly at a normal level, the Crone's is contained to the ilium, and that is was less inflamed than before.  The most recent CT scan showed that there was no change in the size/shape of any of the cancer in Ken's body.  Not awesome news...but what's important is that it's not growing.
  Our doctor said that she is taking Ken's case in front of "the board" later in the week.  The board is made up of medical oncologists, surgical oncologists, radiation oncologists and GI specialists.  In fact, the first doctor who operated on Ken is slated to be present for the presentation of his case.  According to our doctor, they are going to discuss such options as a new chemo regiment, radiation and even surgery.  Our doctor thinks that perhaps surgery may now be an option, because of the amount of shrinkage of the tumor in Ken's rectum.  But for now, it's just more of the waiting game, and like we always say...we'll keep you posted.
  We hope you all are enjoying this unseasonably warm weather, wherever you are and Happy St. Patrick's Day to all of our Irish friends! :)  Love, Ken & Nicole

Saturday, March 3, 2012

Chemo #12, the GI Doc and Fun in the Sun

Hey There Everyone!
  On Friday, February 17th Ken had an appointment with a GI doctor to discuss the location and possible treatment of his Crohn's disease.  Did you know that Crohn's disease is a form of inflammatory bowel disease (IBD). It usually affects the intestines, but may occur anywhere from the mouth to the end of the rectum.  Ken has had this disease since he was 15 years old.  The exact cause of Crohn's disease is unknown. It is an autoimmune disorder. An autoimmune disorder is a condition that occurs when your body's immune system mistakenly attacks and destroys healthy body tissue.  People with Crohn's disease have ongoing (chronic) inflammation of the gastrointestinal tract (GI tract).  Prior to being diagnosed with cancer, Ken's doctor verified that he had Crohn's disease near his ilium.  However, since getting routine CT scans, there has been a discrepancy between where this doctor said his Crohn's was and where his current doctor thinks it may be.  The GI specialist will be running test on Monday, March 5, to verify the Crohn's whereabouts, and then she will decide a course of treatment.  When we met with her, though, she did say that treating the cancer was the number one priority.  We'll keep you guys posted.
  On Tuesday, February  21 it was wheels up for us as we headed to to Key Largo, Florida, for 7 days of fun in the sun!  Our trip highlights included such things as getting see old friends, boating, seeing dolphins swim off the bow of the boat after sunset, visiting Key West, feeding the manatee, snorkeling the John Pennekamp reef, swimming out to Christ of the Deep, and eating such delicacies as Stone Crab, Snapper and Grouper.  Many thanks to James and Jenn Kent for letting us crash in your vacation home and to Mr. and Mrs. Kent for making a special trip down from Coral Gables to see us!  We miss you all already and can't wait until we see you again! :)


























 Also, many thanks to Kris & Lola and Jim & Cappy for taking such good care of our girls when we were gone!!  You guys are awesome! :)
  It was back to reality on Tuesday, Feb. 28th when Ken had the last of his first 12 treatments.  He discussed the possibility of radiation with his doctor, and after much careful thought and consideration, has decided NOT to proceed with it.  Due to the fact that this disease has already metastasized (moved to other parts of his body) we feel that it is better to just stay the course and continue chemotherapy.  Another CT scan will be done in few weeks, and we will know then whether or not the cancer continues to shrink.  We will make sure to keep you all posted.   
  Waiting for us in our mailbox when we got home was a package from Mrs. Katie (Beach) Beaupre!  We opened it to find a bunch of little boxes wrapped and numbered, along with a card and a short story.  As we read the story, there were instructions as to when to open each box...
As we opened each package we found many of our favorite sweet treats!  Thanks, Beach, for thinking of us!!  And for writing such an awesome and creative story!  :)
As winter winds down and begins to turn to spring, we hope you all are happy and healthy...wherever you are!
Love, Ken & Nicole